G
garypetty1@yahoo.com
Guest
This is my cousin Abbie and her mom. Please keep them in prayers. San Diego may be utopia for the weather but it is not (for us) utopia for pediatric medical care...
Abbie and I returned from the Mayo Clinic with such high hopes. Excellent homeopathic suggestions, new medications. Hope...
Because of Abbie's age the gastroenterology department was not able to see Abbie. It seems 16 is the age required for medical malpractice insurance and Abbie is only 14. (Trying not to cry).
Abbie's Mayo neurologist firmly believes the Ulcerative Colitis and Diabetes Insipidus diagnosis are incorrect. He thinks Abbie's symptoms are all part of her Dysautonomia. We had an appointment at Children's Hospital yesterday with a "motility" specialist. Abbie's intestines are clearly NOT moving food. She has tried every laxative prescription or not, known to man and still her stool backs up all the way to her esophagus. This has happened three times. Imagine the pain. Imagine the bloating. Imagine not being able to swallow food because there is simply no more room in her tiny tummy.
The "specialist" decided we should WAIT ANOTHER MONTH... Let's just see if this issue happens again... Let's not take the Mayo Clinic suggestion to be immediately evaluated for motility and ulcerative colitis. Let's wait until Abbie is in agony again. I swear this is actually what happened to us yesterday. He did not even examine Abbie. Nothing. Now what? Where do we go? Children's of Orange County? Children's of LA? Fortunately Abbie's Mayo clinician is looking for an alternative. We will go any where on Earth for answers.
Abbie had a wonderful, wonderful day yesterday. Filled with friends, and sunshine. Unfortunately today the horrible pain has returned. The nausea. The god awful migraine. The weakness and fatigue.
I have faith the answer will come from the Mayo Clinic physicians. It is almost unimaginable that the pediatric health care system in San Diego has time and time again let us down. I had such hope. I had so much joy that Abbie was well on her way to recovery. For now it seems, our journey to wellness continues.
Abbie and I returned from the Mayo Clinic with such high hopes. Excellent homeopathic suggestions, new medications. Hope...
Because of Abbie's age the gastroenterology department was not able to see Abbie. It seems 16 is the age required for medical malpractice insurance and Abbie is only 14. (Trying not to cry).
Abbie's Mayo neurologist firmly believes the Ulcerative Colitis and Diabetes Insipidus diagnosis are incorrect. He thinks Abbie's symptoms are all part of her Dysautonomia. We had an appointment at Children's Hospital yesterday with a "motility" specialist. Abbie's intestines are clearly NOT moving food. She has tried every laxative prescription or not, known to man and still her stool backs up all the way to her esophagus. This has happened three times. Imagine the pain. Imagine the bloating. Imagine not being able to swallow food because there is simply no more room in her tiny tummy.
The "specialist" decided we should WAIT ANOTHER MONTH... Let's just see if this issue happens again... Let's not take the Mayo Clinic suggestion to be immediately evaluated for motility and ulcerative colitis. Let's wait until Abbie is in agony again. I swear this is actually what happened to us yesterday. He did not even examine Abbie. Nothing. Now what? Where do we go? Children's of Orange County? Children's of LA? Fortunately Abbie's Mayo clinician is looking for an alternative. We will go any where on Earth for answers.
Abbie had a wonderful, wonderful day yesterday. Filled with friends, and sunshine. Unfortunately today the horrible pain has returned. The nausea. The god awful migraine. The weakness and fatigue.
I have faith the answer will come from the Mayo Clinic physicians. It is almost unimaginable that the pediatric health care system in San Diego has time and time again let us down. I had such hope. I had so much joy that Abbie was well on her way to recovery. For now it seems, our journey to wellness continues.