Let's lift up 
Let's lift up 
wmnoffaith1
Servant of All
On top of the medical problems I already had, I was recently diagnosed with a degenerative muscle disease which is incurable. While being hospitalized for a fall where I broke 2 ribs, I also found out that I have a heart condition and 2 tumors as well as liver cysts. I passed all of the diagnostic tests to qualify for a brand new drug (the first new drug approved for my condition in over 10 years because it is a rare disease), and even though I was getting progressively worse, all of the Visiting nurses coming out weekly kept telling me to hang in there. I only had to make it until Dec. 20th, when i could start the 7 week treatment for this drug. However, when the time came for the infusion of the drug, and I went to the neurologist, which was a real struggle with my walker, he told me he had no plans to do the infusion. He wanted me to go for an additional test. One of the main problems is that I can't even find anyone to administer this test until March. In the meantime, my condition, especially my heart, have worsened do much that I can barely swallow, speak, and I am waking up at night choking on my saliva. The heart meds aren't working and my blood pressure even with the medication is 140/100. This makes any activity challenging and I am at constant risk of a heart attack; at this point, I may not make it until I can even get the infusion. I am not afraid to die, but it is upsetting because of all of the stress this is putting on my husband.
He works from home, and honestly, aside from occasionally bringing me a drink or helping me to the bathroom, I don't see him all day. I have no support network. I mention this only to say that my husband REALLY IS spending his day working and not taking care of me. Unfortunately, he has a new manager. She had a preexisting group of 9 employees all of whom work from home, but my husband is new to her group. Even though he has been in his job 25 years, and always received good reviews, when his boss found out about my illness, instead of having any empathy for him, she became very suspicious. She actually came out last week and asked him if he actually does any work, or just spends the whole day taking care of me while collecting a paycheck. He is the only one of her staff that she insists on having a weekly meeting. She assigns him all of the most time consuming and difficult problems, and watches him like a hawk. We pray together about this daily, asking the Lord to intercede.
Please pray for my husband Doug. I don't know how much more stress he can take before he cracks, between work, trying to do the food shopping, dishes, etc. and all of the things I used to be able to do, and the medical bills coming in. For the first time ever, we had to pay the rent late just to afford my medicine, and that just about broke him. He was so ashamed. Please pray that God will step in and help us in some way. I know the Lord never gives us more than we can handle, but even aside from his work, it's getting to the point where we will either have to pay rent or my meds. We are in desperate need. Note: we have no credit card debt, eat no takeout, or go shopping. We live on the bare necessities, but even so, things are coming to a desperate pass, and I feel so guilty that I am such a burden and can do nothing to help. We don't qualify for any aid because my husband has a decent job. Some people have actually recommended that we get divorced, this was as a single person with no income, I will qualify for Medicaid!
Please pray for us, especially my husband. I am more worried about him than I am about myself. God Bless anyone that reads this and prays for us and thank you.
He works from home, and honestly, aside from occasionally bringing me a drink or helping me to the bathroom, I don't see him all day. I have no support network. I mention this only to say that my husband REALLY IS spending his day working and not taking care of me. Unfortunately, he has a new manager. She had a preexisting group of 9 employees all of whom work from home, but my husband is new to her group. Even though he has been in his job 25 years, and always received good reviews, when his boss found out about my illness, instead of having any empathy for him, she became very suspicious. She actually came out last week and asked him if he actually does any work, or just spends the whole day taking care of me while collecting a paycheck. He is the only one of her staff that she insists on having a weekly meeting. She assigns him all of the most time consuming and difficult problems, and watches him like a hawk. We pray together about this daily, asking the Lord to intercede.
Please pray for my husband Doug. I don't know how much more stress he can take before he cracks, between work, trying to do the food shopping, dishes, etc. and all of the things I used to be able to do, and the medical bills coming in. For the first time ever, we had to pay the rent late just to afford my medicine, and that just about broke him. He was so ashamed. Please pray that God will step in and help us in some way. I know the Lord never gives us more than we can handle, but even aside from his work, it's getting to the point where we will either have to pay rent or my meds. We are in desperate need. Note: we have no credit card debt, eat no takeout, or go shopping. We live on the bare necessities, but even so, things are coming to a desperate pass, and I feel so guilty that I am such a burden and can do nothing to help. We don't qualify for any aid because my husband has a decent job. Some people have actually recommended that we get divorced, this was as a single person with no income, I will qualify for Medicaid!
Please pray for us, especially my husband. I am more worried about him than I am about myself. God Bless anyone that reads this and prays for us and thank you.
