Thogmyr
Disciple of Prayer
Hello! I always feel like things turn for the better after I ask for prayers, so I thought I would head over here and ask for your prayers and any guidance you may have. I am going to try to keep this brief. In June, my husband was diagnosed with a rare and usually fatal cancer, called bile duct cancer or cholangiocarcinoma. If you read my previous posts, you can see how worried I am about him. By the grace of God, it was caught early enough to where he is able to have a liver transplant and offers him "decades". We are so incredibly grateful for this and he is currently on the transplant list and we are waiting for "the call" at a very reputable transplant center.
Here is where I am struggling. The last 8 months, I have been running on complete ADRENALINE and have been on a very fast moving train. During this time, I feel our marriage was really good and we became much closer. All of our decisions during this time were in this "flight or fight" space. Six weeks ago, we moved across the country with our two young kids and uprooted our lives to be close to the center. We are selling our home in our previous state, while renting a home about 25 minutes from the center. I am the sole income earner and am extremely worried about making ends meet right now. This is after cashing out most of my 401k and donations. We have applied for Disability, but that takes time. Now that the "train has slowed down a little bit, I'm starting to process my emotions. I'm extremely homesick, feeling like we made a giant mistake by making such a bold move (thinking we should have short-term rented here), but my husband was really eager to be here longer term. I'm exhausted, I can't sleep, and feel the weight of the world. I know it sounds extremely selfish to say this, but I am feeling a lot of anger and resentment. My husband talks about starting a new life here where I never committed to that. I committed to be here for the treatment to save his life and being here through his recovery, which should be the main focus right now. I feel so isolated from family, friends, and the joy of living a "normal" life. It feels my wants and desires do not matter at all when I bring up my sadness or vision for the future. There's so much more context, but essentially he has always been "in control" and is a big risk taker. Perhaps it's gotten even more intense because things feel so out of his control right now. I truly do empathize with that but I just don't feel reciprocation in the support I've given him (again another common theme even before diagnosis). When I bring up my concerns, it's a lot of dismissing or even lashing out at me, which makes me feel very alone. I don't think he realizes that cancer affects everyone in the family. His, mine, our children, our parents who miss us dearly.
I am seeing my therapist and part of a caregiver support group. Looking for any perspective and prayer to get through this difficult time as I am really struggling. I'm really trying to get out of this highly anxious and negative state of mind, especially knowing he can get transplanted at any time. Thank you!
Here is where I am struggling. The last 8 months, I have been running on complete ADRENALINE and have been on a very fast moving train. During this time, I feel our marriage was really good and we became much closer. All of our decisions during this time were in this "flight or fight" space. Six weeks ago, we moved across the country with our two young kids and uprooted our lives to be close to the center. We are selling our home in our previous state, while renting a home about 25 minutes from the center. I am the sole income earner and am extremely worried about making ends meet right now. This is after cashing out most of my 401k and donations. We have applied for Disability, but that takes time. Now that the "train has slowed down a little bit, I'm starting to process my emotions. I'm extremely homesick, feeling like we made a giant mistake by making such a bold move (thinking we should have short-term rented here), but my husband was really eager to be here longer term. I'm exhausted, I can't sleep, and feel the weight of the world. I know it sounds extremely selfish to say this, but I am feeling a lot of anger and resentment. My husband talks about starting a new life here where I never committed to that. I committed to be here for the treatment to save his life and being here through his recovery, which should be the main focus right now. I feel so isolated from family, friends, and the joy of living a "normal" life. It feels my wants and desires do not matter at all when I bring up my sadness or vision for the future. There's so much more context, but essentially he has always been "in control" and is a big risk taker. Perhaps it's gotten even more intense because things feel so out of his control right now. I truly do empathize with that but I just don't feel reciprocation in the support I've given him (again another common theme even before diagnosis). When I bring up my concerns, it's a lot of dismissing or even lashing out at me, which makes me feel very alone. I don't think he realizes that cancer affects everyone in the family. His, mine, our children, our parents who miss us dearly.
I am seeing my therapist and part of a caregiver support group. Looking for any perspective and prayer to get through this difficult time as I am really struggling. I'm really trying to get out of this highly anxious and negative state of mind, especially knowing he can get transplanted at any time. Thank you!