My son, William, is 7 and has NF1 (half gene), has three tumors in his brain, fortunately none have caused problems and are stable. One tumor on his ocular nerve and this too has not caused problems. His spine has a 50+ degree curve, bracing was recommended but we have heard of mixed results...
50 degree curve bracing
country: united states
growth rods surgery
happy joyful boy
nf1 half gene
nf1patientsdocs
numerous mri s sedation tests
ocular nerve
one tumor
spinal fusion surgery
